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Development of the PROMIS® pediatric global health (PGH-7) measure

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Abstract

Purpose

To develop a practical, efficient, and reliable pediatric global health (PGH) measure that would be useful for clinical, quality improvement, and research applications.

Methods

Using the Patient Reported Outcome Measurement Information System (PROMIS) mixed-methods approach for item bank development, we identified an item pool that was well understood by children as young as age 8 years and tested its psychometric properties in an internet panel sample of 3,635 children 8–17 years old and 1,807 parents of children 5–17 years old.

Results

The final version of the PGH measure included 7 items assessing general, physical, mental, and social health. Four of these items had the same wording as the PROMIS adult global health measure. Internal consistency was 0.88 for the child-report form and 0.84 for the parent form; both had excellent test–retest reliability. The measures showed factor invariance across age categories. There was no differential item functioning by age, gender, race, or ethnicity. Because the measure includes the general health rating question, it is possible to estimate the PGH scale using this widely used single item.

Conclusions

The PROMIS PGH-7 measure is a brief and reliable 7-item measure of a child’s global health.

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Abbreviations

PRO:

Patient-reported outcome

PROMIS:

Patient Reported Outcome Measurement Information System

PGH:

Pediatric global health

TLI:

Tucker–Lewis Index

CFI:

Comparative Fit Index

RMSEA:

Root mean square error of approximation

CFA:

Confirmatory factor analysis

EFA:

Exploratory factor analysis

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Acknowledgments

The Patient-Reported Outcomes Measurement Information System (PROMIS) is an NIH Roadmap initiative to develop a computerized system measuring PROs in respondents with a wide range of chronic diseases and demographic characteristics. PROMIS II was funded by cooperative agreements with a Statistical Center (Northwestern University, PI: David Cella, PhD, 1U54AR057951), a Technology Center (Northwestern University, PI: Richard C. Gershon, PhD, 1U54AR057943), a Network Center (American Institutes for Research, PI: Susan (San) D. Keller, PhD, 1U54AR057926), and thirteen Primary Research Sites, which may include more than one institution (State University of New York, Stony Brook, PIs: Joan E. Broderick, PhD and Arthur A. Stone, PhD, 1U01AR057948; University of Washington, Seattle, PIs: Heidi M. Crane, MD, MPH, Paul K. Crane, MD, MPH, and Donald L. Patrick, PhD, 1U01AR057954; University of Washington, Seattle, PIs: Dagmar Amtmann, PhD and Karon Cook, PhD, 1U01AR052171; University of North Carolina, Chapel Hill, PI: Darren A. DeWalt, MD, MPH, 2U01AR052181; Children’s Hospital of Philadelphia, PI: Christopher B. Forrest, MD, PhD, 1U01AR057956; Stanford University, PI: James F. Fries, MD, 2U01AR052158; Boston University, PIs: Stephen M. Haley, PhD and David Scott Tulsky, PhD (University of Michigan, Ann Arbor), 1U01AR057929; University of California, Los Angeles, PIs: Dinesh Khanna, MD and Brennan Spiegel, MD, MSHS, 1U01AR057936; University of Pittsburgh, PI: Paul A. Pilkonis, PhD, 2U01AR052155; Georgetown University, PIs: Carol. M. Moinpour, PhD (Fred Hutchinson Cancer Research Center, Seattle) and Arnold L. Potosky, PhD, U01AR057971; Children’s Hospital Medical Center, Cincinnati, PI: Esi M. Morgan DeWitt, MD, MSCE, 1U01AR057940; University of Maryland, Baltimore, PI: Lisa M. Shulman, MD, 1U01AR057967; and Duke University, PI: Kevin P. Weinfurt, PhD, 2U01AR052186). NIH Science Officers on this project have included Deborah Ader, PhD, Vanessa Ameen, MD, Susan Czajkowski, PhD, Basil Eldadah, MD, PhD, Lawrence Fine, MD, DrPH, Lawrence Fox, MD, PhD, Lynne Haverkos, MD, MPH, Thomas Hilton, PhD, Laura Lee Johnson, PhD, Michael Kozak, PhD, Peter Lyster, PhD, Donald Mattison, MD, Claudia Moy, PhD, Louis Quatrano, PhD, Bryce Reeve, PhD, William Riley, PhD, Ashley Wilder Smith, PhD, MPH, Susana Serrate-Sztein,MD, Ellen Werner, PhD and James Witter, MD, PhD. This project was supported by grants from the Agency for Healthcare Research and Quality (U18HS020508) and the National Institutes of Health (U01AR057956-02).

Author information

Authors and Affiliations

  1. Department of Pediatrics, Children’s Hospital of Philadelphia, 34th Street and Civic Ctr Blvd, Philadelphia, PA, 19104, USA

    Christopher B. Forrest, Katherine B. Bevans, Ramya Pratiwadi, JeanHee Moon, Rachel E. Teneralli & Jo M. Minton

  2. Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia, PA, USA

    Christopher B. Forrest

  3. College of Health Professions and Social Work, Temple University, Philadelphia, PA, USA

    Carole A. Tucker

Authors
  1. Christopher B. Forrest
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  2. Katherine B. Bevans
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  3. Ramya Pratiwadi
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  4. JeanHee Moon
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  5. Rachel E. Teneralli
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  6. Jo M. Minton
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  7. Carole A. Tucker
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Corresponding author

Correspondence to Christopher B. Forrest.

Additional information

This manuscript was reviewed by PROMIS reviewers before submission for external peer review.

Appendices

Appendix 1

See Table 6.

Table 6 Pediatric global health (PGH-7) items, child-report form
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Appendix 2

See Table 7.

Table 7 Pediatric global health (PGH-7) items, parent-proxy report form
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Forrest, C.B., Bevans, K.B., Pratiwadi, R. et al. Development of the PROMIS® pediatric global health (PGH-7) measure. Qual Life Res 23, 1221–1231 (2014). https://doi.org/10.1007/s11136-013-0581-8

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